Sunna Valdís turns 20

On 9 February, Sunna Valdís turned 20, a milestone that once seemed impossible. As the only person in Iceland living with...

February 24, 2026

International AHC Day – Giving a Voice to a Rare and Often Invisible Disorder

January 18 January 18 marksInternational AHC Day, a global day of awareness forAlternating Hemiplegia of Childhood (AHC),...

January 18, 2026

The mission of AHC Europe is to support and connect AHC families and to accelerate research into effective treatments for...

December 15, 2025

The AHC Europe Annual General Meeting took place on 9 December, bringing together member associations to review the past...

December 14, 2025

PARIS, FRANCE | 24–26 SEPTEMBER The next ATP1A3 Symposium will take place in Paris at Hôpital Pitié-Salpêtrière, a hospital...

November 26, 2025

Every year on January 18, we come together to raise awareness of Alternating Hemiplegia of Childhood (AHC). This day reminds...

November 22, 2025

by Dr Quentin Welniarz, neurologist at La Pitié-Salpêtrière Hospital in Paris (Translation of the study article from the...

October 15, 2025

CAIRNS, AUSTRALIA | 15–16 SEPTEMBER The 13th ATP1A3 in Disease Symposium took place in Cairns, Australia, on 15–16 September...

September 30, 2025

Join our AHC Federation of Europe’s next Annual General Meeting (AGM). Featured Image: Photo by Sincerely Media on Unsplash Annual...

December 2, 2024

12th Symposium on ATP1A3 in Disease Welcome to the 12th Symposium on ATP1A3 in Disease, a scientific meeting that traces...

October 16, 2024

RARE DISEASE DAY Today, 28th February is the Rare Disease Day internationally. Every four years this falls on 29th February,...

February 27, 2023

How to join Microsoft (MS) Teams for the AHCFE Annual General Meeting (AGM) Please use this link to join the Microsoft...

November 2, 2022