Rare Disease Day Newsletter 2023

Rare Disease Day

Today, 28th February is the Rare Disease Day internationally. Every four years this falls on 29th February, highlighting the rarity.

We hope you can join in raising awareness of AHC as part of Rare Disease Day. Around Europe, and the world, buildings will be lit up for Rare Disease Day and events will be taking place.If your area is doing this, please share it with us on social media with the hashtags AHC Challenge for Rare Disease Day

AHC IS 1 IN A MILLION

Research We are keen to collect information on what research is taking place across Europe to highlight on our website. If your country is undertaking research, please contact us as we have a short form to complete that can be uploaded on the AHCFE website and accessible to everyone.

AHCFE We recently had an executive board meeting and are working on some plans aligning with our organisation's mission and goals. We will be in touch soon to update you on these. In the meantime, if you have any questions or need to contact us, please email us on [email protected]

With best wishes

AHCFE Executive Board